We saw Dr. Bertolini and Dr. Mitchell today. Their opinion is that I probably have ALS. No one can say "defintively" that I have a disease, that has no finite diagnostic tests. It's a rule-out disorder. They did additional nerve and muscle tests today, all of which lead them to the belief that I do indeed have ALS. They are running a few additional blood tests. I will have the results of those by the time of my next visit, October 10th. Again, they are just confirming that there isn't another disease that I may have, that could indeed be treatable.
They can't tell me what happens next physically, because each patient presents with different symptoms. Time will tell where the next twitch will be. At this point only my extremities are affected. The spine, chest and tongue show no signs of degeneration, which is fabulous news.
So, what can anyone do know? Pray, think positive thoughts and start talking about ALS. If you haven't signed up as a team member for the ALS walk on Oct. 20, please do. Being a team member doesn't mean you have to donate, or even walk. It simply shows that you support the disorder.
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2 comments:
Just seeing if comments will show up.
Darrin
Yes they do
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