Home at last!

Hidee hoo there everyone!

I'm HOME and thrilled about it. It's hard to describe what it's like to go nuts, but I did it. I would like for others to remember this experience. If your loved one starts talking out of their head, get them to the doctor. If Darrin hadn't done this for me I don't know where I'd be. Nobody would think a urinary track infection could cause delirium, yet it does.

Now, I have to point out that this isn't something typical for people my age (37). Of course, it has to happen to me. It's times like this when I wonder if this is a reason that things like this happen to me............a learning experience for ourselves and/or others? Whatever reason it happened, I'd like a break!!!

Deke cut his first lower molar today. My little feller grew longer, lost some of his pot-belly, but he still remembers his mama. Chase is watching me like a hawk, but is starting to relax. Darrin caught up on much needed sleep.

Love to all!

On the way home

I talked to Ami and her and Shirley were on their way home. I am sure that they were going to stop to pick up the little critter! The doctor's are going to continue the antibiotic and they have given Ami something different to help her sleep at night. A lot of her fatigue comes from not sleeping well at night.

I am sure that this weekend will be spent getting ready for the big trip, as well as just spending time together outside of a hospital setting. Ami will probably take over the blogging again 0nce she feels 100%, although I might chime in with something every now and then.

Have a good weekend and make sure to keep in touch with Ami, she will let you know if she is too tired to talk.

Going home Friday!

Hello everyone, Dr. Bertorini said that Ami should be able to go home tomorrow as long as the MRI looks good. He was irritated that they had not done the MRI yet. All of the other doctors have cleared her; internal medicine, pulmonary, and infectious diseases.

Thanks to everyone who was thinking of us this week, it will be nice to sleep on a bed instead of a hospital room couch. I think Ami is through trying experimental medicines, this last round was just too hard on her.

We are looking forward to our trip next Thursday, as long as Ami continues to be in good health.

Update on Ami

Hi everyone, it has been a crazy week for us here in Tennessee. Last week Ami started having some confusion and hallucinations. She ended up falling on Friday and hurt her hip and left side of her body. Since she had fallen several times in the last couple of weeks, we decided a trip to the emergency room for some X-rays was in order.

The good news was that nothing was broken; however she had a urinary tract infection, she was dehydrated and some of her blood results were abnormal. Dr. Bertorini decided to admit her so that we could try to figure out what has been happening. He has had many different doctors see her including a pulmonologist, an infectius disease doctor, an internal medicine doctor as well as a physical therapist to check her swallowing.

On Sunday, Ami woke up refreshed and was able to enjoy a visit with Chase and Deke. We felt like she had turned the corner and were feeling good about her progress. However, Sunday night she did not sleep very well and on Monday she was not doing as good as she had been. We think a big part of what's going on is that her body is not getting the rest she needs.

Dr. Bertorini is going to schedule an MRI to see if they can pinpoint what is causing her headaches and her confusion. He did mention that there is some atrophy of the frontal lobe of her brain, which can happen in people with ALS. We are hoping that this is not too serious and that with rest, antibiotics and other medication Ami can return to her normal, bubbly self!

I will try to keep everyone updated through the blog, since it becomes tiresome repeating everything to a dozen different people. Please keep our family in your prayers and we appreciate all the help and support that everyone is providing.

Hypnotrader is a screen name I use online, not sure why it didn't use Darrin, but it's me!