Update on Ami

Hi everyone, it has been a crazy week for us here in Tennessee. Last week Ami started having some confusion and hallucinations. She ended up falling on Friday and hurt her hip and left side of her body. Since she had fallen several times in the last couple of weeks, we decided a trip to the emergency room for some X-rays was in order.

The good news was that nothing was broken; however she had a urinary tract infection, she was dehydrated and some of her blood results were abnormal. Dr. Bertorini decided to admit her so that we could try to figure out what has been happening. He has had many different doctors see her including a pulmonologist, an infectius disease doctor, an internal medicine doctor as well as a physical therapist to check her swallowing.

On Sunday, Ami woke up refreshed and was able to enjoy a visit with Chase and Deke. We felt like she had turned the corner and were feeling good about her progress. However, Sunday night she did not sleep very well and on Monday she was not doing as good as she had been. We think a big part of what's going on is that her body is not getting the rest she needs.

Dr. Bertorini is going to schedule an MRI to see if they can pinpoint what is causing her headaches and her confusion. He did mention that there is some atrophy of the frontal lobe of her brain, which can happen in people with ALS. We are hoping that this is not too serious and that with rest, antibiotics and other medication Ami can return to her normal, bubbly self!

I will try to keep everyone updated through the blog, since it becomes tiresome repeating everything to a dozen different people. Please keep our family in your prayers and we appreciate all the help and support that everyone is providing.

Hypnotrader is a screen name I use online, not sure why it didn't use Darrin, but it's me!