Friday, October 26, 2007

Funny stories about the boys

The other morning Nana saw Chase heating up the oven to cook two sausage and biscuits. Mom told him that he could just use the microwave and Chase responded "The directions say you have to have a microwave OVEN." You gotta love him. I have to give him props though, he did read the directions.

Lewis, Nana and Chase have taught Deke some new tricks. He can clap, do the wave and yell YAY. It was neat at first, but that's ALL he does now. It's still cute though. Deke is pushing everything around. High chair, walker, trash can, office chair and the vacuum. Every few minutes I find something he's moved from room to room. He is standing on his own for a few seconds and just so close to standing without props.

Enjoy the weekend!

Thursday, October 25, 2007

October 25, 2007 - Great News today!

I heard from my employee disability carrier today and was told that my disability was approved. This relieves a huge burden off of me. I was concerned that my decision to stay home with the boys and Darrin could cause financial hardship on us. Of course, Darrin was never worried! He's my "No worries Man". For those that don't know, any worry or concern I've had, Darrin has found out the answer. He's still waiting for me to find something new to worry about so he can stay sharp.

Out of towners that came for the walk and the cookout

I totally forgot to even mention the friends and family that came in for the walk. Between Friday and Sunday, we had fifteen people stashed in every room of the house. Most of them swapped rooms or made sleeping adjustments after the first night...giggle. My mother and Lewis came in Wed night and were a huge help in getting everything set up and organized for the other guests and the cookout. Which, by the way, had approximately 30 guests and generated over $300 for ALS, as well as creating massive left overs. They plan to stay until Saturday a.m. and then head back to Austin. I tease her that the only reason she stayed this long was because Darrin went out of town and she could have us all to herself. We've had a truly fantastic visit.

My brother Mickey, sister-in-law Val and nephew Rudy flew in from San Fransisco Friday evening. Just after most of the cookout crew had left, but still in time for the grill to be fired back up. They stayed until Tuesday. Rudy had fun running about, playing in the street (not a regular occurrence in the hills of Berkeley) and taking a bath with Deke. We had a surprise birthday celebration for both Mickey and Rudy. Mom made Mickey's favorite cake....coconut (not my favorite by a long shot!) and they (everyone but Darrin, Chase and myself) ate it until they felt it. Mickey even packed the rest to take home to Berkeley. Mom and Lewis had given Rudy a big red Mack dump (aka TUMP. It's a word. Look it up.) truck, which was a big hit.

My friend, "my Marcia" (aka brown recluse bite victim) flew in from Chicago, Friday night at the same time as my brother and his clan. She was able to see many of her friends from the Navy world, as well as keep me company at the minor medical. Seriously, the latest on the bite is that it's doing well and appears as though it will only leave a scar the size of a chicken pox.

Darrin's cousin Matt, Amie, their three children Marie France, Barret and Woodley, as well as a 1/2 cow and hog (butchered and frozen by Yoder Meats) made the 10 hour drive from Kansas. They arrived around 2:00 a.m. Saturday a.m. and still woke up bright and shiny for the walk. They had to get back to the working world and left Sunday a.m., after the first Amie Yoder was kind enough to make me look fabulous by cutting my hair. I'm all set to let my locks grow. Although, I'm sure we'll have to find our way to Kansas for a trim in the near future.

Over the weekend we broke out the Acquire board game. Which is one of Darrin's favorite games. I have to mention that my brother beat him TWICE. Matter of fact Darrin came in dead last in the first game. Darrin had to confirm the score after tallying the totals, i.e. the game "went to paper", by then going "to the calculator". Even Mom and Marcia, who were first time players beat him. The second game he came in 3rd (I was second) only because Mickey and Darrin suckered Val into playing. Her placement was understandable since she was the newbie. I have total faith that she'll rally in the rematch.

Tuesday, October 23, 2007

Oct. 23, 2007 - After the walk

Thanks to everyone that donated, contributed and walked with our team. We had family that walked in cities at other ALS walks and others who created their own walk and walked at the same time as we did. Each of you share a special place in my heart. To try and express how your support makes me feel is an impossibility. Together our team has currently raised almost $9,000. The monies turned in at the walk have yet to be posted, but we expect the totals to be over $12,000.

For those of you who weren't at the walk, I'll try and provide a narrative description of the day. Our journey to the walk was a bit lengthy, because "we" didn't know where exactly at the park the walk was going to be. After touring the surrounding 3 mile radius of the park, we finally found our team. Of course, since they're friends, they expected nothing more from me. Once we arrived, we spent the time before the walk talking and taking group pictures. I'll forward these along once they've been sent to me, which I believe will be in a week or so.

During our group pictures Kelly took a tumble in a hole. Of course, Kelly being Kelly, rallied quickly and lead the team for the entire walk. For those that are concerned, she's alright, but extremely sore. We're hoping that there isn't any permanent damage.
The walk was suppose to be for 3 miles, but a6fter the first lap, the majority of the folks quit walking. I know that after one lap I was D O N E. The only person (of the hundreds attending) that walked the full 3 miles was Mackie (Darrin's partners wife). You could almost see the smoke coming of her feet because she moved so fast.

After the walk the team converged on the pizzas that were donated by Johnnie Brusco's and the ribs from Texas Roadhouse. I have to admit that I just needed to sit and used the ruse of eating pizza as my cover for near exhaustion. All the kids played in the space walk, had their faces painted and ran around like crazy loons.

Once I'd rested a bit, I met some of the other people that had ALS, several of whom I've been communicating with via email. Each of these people were able to give me amazing advice. I believe the most touching moment of the walk was after the majority of the people had actually left. Debbie Smith (of the Dream team - blue shirts and #1 fund raising team) asked to meet with me. Her advice touched me deeply. Even though this was the first time we had met her, we shared a bond that isn't easily defined. We had downloaded her story from the MDA telethon and since Chase had seen it, he had wanted to meet her. He'd even written a paper for school that had incorporated her story. We found it curious that this one person had seemed to have such an impact on Chase. Chase met her at the walk and talked with her. This was the first time since my diagnosis that Chase had really gotten emotional. He placed his Strike Out ALS bracelet on her arm and she told him, "Your mom is a fighter and that's what you need to be with this stupid disease." I'm sure there were other things shared between them, but this was what Chase remembered. We'll be contacting Debbie and hope to see her again soon.

It turns out that Kelly's fall wasn't the only thing we had to be concerned about. My friend Marcia who'd come from Chicago for the walk, had noticed what she thought was a a blister on her forearm Friday morning, had become inflamed, swollen and not so pretty by Friday night. Saturday morning it had spread even further into the surrounding tissue. After the walk, I took her to the minor medical and she was diagnosed with having a brown recluse spider bite. The doctor described the bite as being moderate to severe and treated it very aggressively. Marica had 3 injections before she left: an antibiotic, a steroid and tetanus. The doctor also prescribed 4 medicines to get filled after we left. One of these she had to do blood work for, to make certain she didn't have a certain gene, because if she did she would die if she took this medicine. The entire situation was surreal. I tried to take her mind off things by pointing out that if she'd wanted some alone time with me, she didn't have to go to such extremes. Marcia returned home Sunday night, saw her doctor Monday morning an6d also had the exterminators out. The bite seemed to be doing better, but now seems to be changing color. So she goes back to the doctor again today. The doctor here had told her that no matter how she was treated that it may not stop the tissue from dying. We're hoping that it's going to be getting better quickly. I'm going to try an add photos to the blog as well.

Thursday, October 18, 2007

Thursday, October 18, 2007

Mom and Lewis arrived last night safe and sound. They made good time, even though it rained most of the way into Tennessee.

This morning we went to shallow water aerobics. This time the average age was around 60, but they still schooled me. Turns out this was the biggest class ever. Imagine the waves generated by 20 people jumping (I wasn't one of those that were jumping). I swallowed a good bit of water until I made it to the side of the pool. It wasn't until this class that I realized that my body just couldn't keep up with my brain. Thankfully, I was in water and not on land, otherwise it could have been ugly...giggle... A half-hour in an mom realized she was going to have to pace herself. Poor Lewis was struggling just to keep up. By the time he understood what the position was, it would change. We think he probably thought it was a bouncing class...snort.

After the class we headed up to Chase's school. Chase has raised $300 in two days. These kids are phenomenal. We met one girl whose father has ALS. She's going to buddy up with Chase. It's good that he'll have someone to talk too. Their family has a team in the walk called Taylor's Trailblazer's.

The rest of the family that is coming in for the walk, get in tomorrow night. We're having the cove party to celebrate their visit, as well as to bring our neighborhood together. We look forward to seeing everyone at the walk.

Thank you to everyone that has contributed/donated to the walk. Our team has generated over $7,000 and it's still going strong.

Monday, October 15, 2007

Beautiful Baby Contest

I just received a call from Wal-Mart. Deke won the Beautiful Baby contest for the week, at the Collierville store.

Of course, I'm not surprised!

Monday, October 15, 2007

We had a busy weekend. Friday night we saw the movie We Own the Night. It was OK, I'd give it a 2 out of 4. Saturday we spent getting the house ready for company next weekend. We also joined the Y in Collierville. Pretty nifty place. Sunday, Chase played bells in the Sanctuary and they made no mistakes! Poor feller, never saw us though and sat with friends. He even called the house to tell us he was looking for us......sigh. It was kinda funny that we had no problem finding him after the service!

Darrin had to work this weekend because of the October 15th tax deadline. Hold on honey, today's almost over! He heads out of town Wed and gets back in time Friday for the cookout.

I went to my first classes at the Y this a.m. The first class was called Arthritis aerobics. I was the only person under 65 in the water and got SCHOOLED by those ole folks! After this, I went to a foundations Yoga class. Alright, now picture me trying to balance in just about any pose....Yes, it was an interesting class. The instructor was awesome and told me that I could feel a sense of accomplishment if I learned to breath correctly with the movements. I left have a kinda, sorta feeling of accomplishment. I'd lose my focus trying to move and breath. The instructor thought I might be taking on too much to fast and encouraged me to stick with just the water aerobics for 60 days and then start her class again, but never twice in one day. She does teach individuals, but isn't familiar with ALS, although she plans on doing research so she can determine what she can offer for me and we'll talk again on Wed. I like the idea of individual instruction, because of the specialized (that's me, SPECIAL) needs that I have.

Also, we picked up Jilda's Halloween costume. She's going to be a spider. Savannah's a bumble bee; Deke's a monkey; Chase is the reaper; Darrin and I are still in progress. I'm thinking of an Ape for Darrin, since Deke's a monkey and a witch for me, since I already have a hat.

Enjoy your week!

Thursday, October 11, 2007

Thursday, October 11, 2007

We saw Dr. Bertorini yesterday. All the blood work has come back and everything was normal. Translation, there is no other medical condition that I could have, other than ALS. While, that isn't the greatest thing in the world to hear, it does mean that I can now participate in clinical trials and research. The most cutting edge research is gene therapy. The theory is that there is a gene mutation that causes ALS, outside of having a hereditary link. They've identified the gene that causes ALS, now they need to determine how to stop it. According to Dr. Bertorini, the pilot has already been completed and phase II should be starting soon. Now that I have my medical records, which have done the "rule out" of all other diseases/disorders, I can pitch myself to research facilities. That's if I want to go elsewhere for a certain trial.

Dr. Bertorini did start me on Rilutek. This is the only drug that is FDA approved for ALS and has shown to give an increase in the life expectancy from anywhere between 2 to 21 months. Thank God my insurance covers the drug, because it was over a $1,000! I also started on CoQ12 and Vit E. He increased the dilantin and zanaflex to help with the cramping and stiffness.

I meet with the physical therapist who gave me some great exercises to do with my right arm, shoulder, right leg and breathing. Her concern related to my right hand, is that it's starting to curl up and my right shoulder, which is very stiff. Her concern about the shoulder is that it will become "frozen", i.e. because my arm tends to just hang, it's pulling away from the joint, which would lead to inflammation and then "freezing". She encouraged me to get in the pool to help with the foot (the toe drags). For the breathing I have to take deep breaths and cough 4 times. This will help clear or keep my lungs clear. Hopefully, these exercises will help with the right arm/foot. If not, she'll fit me for braces. I agreed with her approach to start with the exercises, because if we went to a support device that does the work for the muscle, then I'd lose that muscle quicker. So I'll be working on those!

I go back in 3 weeks to have some blood drawn to make sure the Rilutek isn't eating away my liver.

My brother has become involved with several different ALS groups in California and they have some great ideas and programs. One of which is Extra Hands. This organization is a non-profit agency that provides students (high school/college) that volunteer a few hours a week, to come to your home and assist you with things needing done around the house. Darrin and I are going to be talking with the CEO today about starting a Memphis Chapter. Hopefully, we can get this going here in Memphis!

That's all I have for today :)

Monday, October 8, 2007

Block Party

Cook out in the Cove, October 19, 2007 at 6:00 p.m.

Hosted by the Yoder’s @ 255 Ellawood Lane
901-861-2637

Dear Neighbor,

We have friends and family that are coming into town to for the Walk to D’Feet ALS on October 20th. We thought that this would be an excellent opportunity for the neighbors to have a “get together” as well.

We envision everyone mingling, the kids playing and of course food! We will be providing the meat, please bring side dishes and drinks. Also, we are asking for a $5 donation per family to go towards Ami’s Awesome Army!

If you’d like to join us for the walk, we’ll be happy to see you there!

Schedule: Registration: 10am, Walk Begins: 11amOn-line Registration: http://web.alsa.org/goto/ami.yoderDate: October 20, 2007Location: Audubon Park (Texas Roadhouse to cater ribs and peanuts after the walk)

Friday, October 5, 2007

Friday, October 5, 2007

Hard to believe that it's already the weekend! We don't have any set plans for this weekend.

Chase has Fall Break, which means no school until next Wednesday. He's already calling all his buddies to see who can spend the night each night until then. Boys...boys...everywhere boys!

I think Deke is working on cutting another tooth. He seems a little cranky :(

Hope everyone has a great weekend!

Thanks for all your support for the walk. We're team #2!!!

Ami

Tuesday, October 2, 2007

Tuesday, October 2, 2007

Let's see.......Chase went to his first dance. He was chased (get it?) around the entire time by a FAT girl. His friend Allysia told him that she liked him and when he told her that he just wanted to be friends, she was hurt............then MAD. She was still mad when we went to pick him up. To ask Chase, he'll tell you that he a good time.

Our friends Kelly and Randy joined us for Friday night for dinner. It was scrumptious and the company was spot on.

Deke has a new tooth. It's the lower right eye tooth. He's up to 5 chompers now. He has a real annoying habit of clacking his teeth together.....shutter. It's like a clack and grind, all at the same time. Apparently, teeth grinding is an inherited Yoder trait. Getting up from giving him a bath has been a bit of a challenge lately, so we've started taking showers together. He loves his showers. He just crawls around on all fours and does a little booty wiggle every once in awhile. He could stay in there for hours watching the water go down the drain.

Darrin will be home shortly. He's got to get in poker mode and win the charity tournament tonight. We planning on all being in the office why he plays, so we can root him on. He went to the dentist last week and wouldn't ya know it, he had no cavities. How is it that he goes to the doctor, has LOST weight and then goes to the dentist and has no cavities? I go to the doctor, haven't lost a pound or gained a few and always have to have a filling replaced when I go to the dentist? Yes. I'm jealous. Also, he's A1C was 6.3. Which means his new med is working great.

The girls are still in heaven. I washed the sofa covers. I never realized you could take those off, simply by using the zipper (Darrin pointed that out) and it's like having new furniture. I have to admit they look fabulous and the guys say it smells better in the sun room.

Interesting thing happened while I was stuffing the cushions back into the pillow covers. The pinkie finger on my right hand folded up like an accordion. It didn't hurt, but sure looked like it should have. It hasn't looked the same since. Oh well, I can still wiggle it and stick it up if I drink tea.

That's all for now.